Spina Bifida Association of Greater New Orleans

                                                                     We serve the entire state of Louisiana

What is Spina Bifida?

Spina Bifida occurs within the first month of pregnancy resulting in an incomplete closure of the spinal column. Spina Bifida is the most frequently occurring permanently disabling birth defect affecting approximately one out of every 1,000 newborns in the United States.

What Causes Spina Bifida?

The cause of Spina Bifida is not known with certainty, however, scientists believe that genetic and environmental factors may act together to cause Spina Bifida.

How is Spina Bifida Treated?

A child with the most severe form of Spina Bifida usually is operated on within 24 hours after birth. Surgery is generally performed to minimize the risk of infection and to preserve existing function in the spinal cord.

Meningocele, which does not involve the spinal cord, can be repaired surgically, usually with no paralysis. Although most children with meningocele develop normally, affected children should be evaluated for hydrocephalus and bladder problems in order that they may be treated properly.

Spina Bifida occulta, in most cases, usually requires no treatment.

Can Anything Be Done to Prevent Spina Bifida?

Yes. Recent studies have shown that if all women of childbearing age were to consume400 micrograms (mcg), also written as 0.4 milligrams (mg), of folic acid prior to becoming pregnant and throughout the first trimester of pregnancy, the incidence of Spina Bifida could be reduced by up to 75%.

With half of the pregnancies in the United States unplanned, SBAA encourages women to take a multivitamin containing 400 mcg of folic acid each day throughout their reproductive years. In addition, women at increased risk for Spina Bifida (women who have a child with Spina Bifida, have had an affected pregnancy, or have Spina Bifida themselves) should take 4000 micrograms (mcg), also written as 4.0 milligrams (mg), of folic acid by prescription for 1 to 3 months before becoming pregnant.

What is Folic Acid?

Folic acid, a common water-soluble B vitamin, is essential for the functioning of the human body. During periods of rapid growth, such as pregnancy and fetal development, the body's requirement for this vitamin increases.

What Conditions Are Associated With Spina Bifida?

Special attention is needed to identify and treat condition associated with Spina Bifida. Due to the wide range of neurological damage and mobility impairments, it can be difficult to identify some secondary conditions. Attention should be focused on the psychological and social development of children and young adults with Spina Bifida. Conditions associated with Spina Bifida include mobility impairments, bowel and bladder complications, latex allergy, tendonitis, obesity, skin breakdown, gastrointestinal disorders, learning disabilities, depression, and social and sexual issues.

What Physical Limitations Exist?

Persons with Spina Bifida need to learn mobility skills and often, with the use of crutches, braces, or wheelchairs can achieve more independence. Also, with new techniques, children can become independent in managing their bowel and bladder problems. Physical disabilities like Spina Bifida can have profound effects on the child's emotional and social development. It is important that health care professionals, teachers, and parents understand the child's physical capabilities and limitations. To promote personal growth, they should encourage children (within the limits of safety and health) to be independent, to participate in activities with their non-disabled peers and to assume responsibility for their own care.

Can Spina Bifida Be Detected Before Birth?

Yes. There are three prenatal tests that can be done to detect Spina Bifida.

First, most women in the United States have blood drawn during the 16-18th weeks of pregnancy to check for blood levels of a protein called alpha-fetoprotein (AFP screening test), which is elevated in about 75-80% of women having fetuses with Spina Bifida.

Second, ultrasound (sonograms) of the fetus can detect signs of Spina Bifida such as the open spine.

Finally, maternal amniocentesis, in which a small sample of the amniotic fluid is withdrawn through a thin needle, can detect alpha-fetoprotein or another protein. Unfortunately, there are limitations on any test, and these tests do not identify a child with Spina Bifida in every single case.

What is the Long-Term Outlook for Children With Spina Bifida?

Fortunately, with the proper medical care, children with Spina Bifida can lead active and productive lives. Most are successful in school and many are actively involved in modified sports activities despite their physical challenges. Due to medical and surgical interventions over the last 40 years, approximately 90% of babies born with Spina Bifida survive into adulthood, approximately 80% have normal IQ scores, and approximately 75% are in competitive sports and recreational activities.

This information does not constitute medical advice for any individual. As specific cases may vary from the general information presented here, SBAGNO advises readers to consult a qualified medical or other professional on an individual basis.

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Copyright © 2007 Spina Bifida Association of Greater New Orleans
Last modified: 04/13/08